loading-image
Jan Swasthya Sahyog is on a mission to control Sickle Cell Anaemia

By auther pic. Hiral Badiyani

April 21, 2022

Jan Swasthya Sahyog is on a mission to control Sickle Cell Anaemia

District Collector Anuppur interacting with SCD patients in a Sickle Patient Support Group Meeting.

Jan Swasthya Sahyog is an institution working for patients suffering from Sickle Cell Disorder (SCD). It has been active since August 2018. It initiated its work in the Anuppur district. The Jan Swasthya Sahyog has been working in healthcare with an aim to develop an affordable, accessible, and effective health system for the people, irrespective of their caste, creed, race, religion, or social standing. 

Jan Swasthya Sahyog believes in the values of honesty, integrity, compassion, and respect for humanity as a whole. They intend to develop an understanding of people's problems at a grassroots level and commit to bringing a solution for them to lead a healthy life. They plan to achieve the same by understanding the problems in public health and helping get a solution around it for them and others, who are on the same path, to use and make a difference.

The organization has been working on Sickle Cell Disease for quite some time now. SCD is a blood cell disorder ordinarily inherited from one’s parents. The red blood cells responsible for carrying oxygen in the blood are C-shaped for people with this disorder. Hence, it is known as Sickle Cell Disease. These cells often get stuck or clog the blood when traveling through small blood vessels. Such situations can cause pain, infections, or stroke. 

Jan Swasthya Sahyog has screened 68,372 people in the Anuppur district. They have a population of 8,20,000, out of which 48% are tribal people. Out of 8.33% of people screened in the area, 1315 people are sickle patients, and 12,439 are sickle carriers, making 13,754 positive cases of SCD. This essentially means 20.12% of the people screened are positive for sickle cell, yet hardly anyone is aware of the same. Even the district hospitals nearby these areas are not able to diagnose the problems effectively due to the lack of appropriate tools for the same. One such case of Rohit Kumar Goyal was registered in the Sickle Cell Anaemia Mission on 17th October 2018.

Rohit undergoing for an X-ray of his knees

 

At the time of Rohit Kumar Goyal’s case, he was wrongly treated for almost 11 years before being diagnosed with SCD by the doctors of Jan Swasthya Sahyog. The doctors immediately started prescribing Hydroxyurea, but once the dose was over, he couldn’t find another supply near his village, not even in the district hospital. He experienced infections and was dependent on others for his routine. After facing various struggles at the district hospital, his condition became worst. He got severe infection in his knee because of that he lost ability to walk and became dependent on another person even for his daily routine work. But after registration in this project, he received Hydroxyurea, folic acid, and paracetamol, other necessary treatment, counselling by counsellors. Additionally, Jan Swasthya Sahyog also offered frequent follow-ups. Now he can walk properly, opened his own shop for earning, and ride a bicycle to travel to nearby villages. There are thousands of such stories from this project in the Anuppur & Dindori districts. 

Rohit opened his own shop after his knees recovered, becoming independent

Rohit becomes independent after his knees recovered, and opened his own shop

 

Under this mission, Jan Swasthya Sahyog takes up the following activities:

Screening -

  1. Door to door screening of pregnant women & school-going children
  2. Screening of all the blood relatives of positive cases.

Sickle Patient Management -

  1. Patients Support Group Meetings (Counselling, Patients Group  Interaction, quarterly follow-ups, Regular Check-ups, Screening & Drugs) 
  2. Case sheet review for hospitalized patients 
  3. Arrange emergency blood donors for patients in need.

Creating & strengthening the system -

  1. Training lab technicians for diagnosis & screening
  2. Training doctors for management of SCD
  3. Training staff nurses for patient care
  4. Installing Hb Electrophoresis Machine in 2 CHC & 1 DH, ensuring continuous supply of reagents & consumables 
  5. Ensuring continuous supply of drugs - Hydroxyurea 500 mg, Plain Folic acid 5 mg, Tramadol 50 mg - for district & state hospitals
  6. Supportive supervision of trained staff

Develop materials to help manage SCD -

  1. Doctor’s manual for managing SCD patients
  2. Lab technician’s manual for diagnosing & screening SCD
  3. Patient’s counseling manual in Hindi
  4. Developed an Android-based offline software & online registry of patients

Lab Technicians of JSS conducting Hb Electrophoresis test in their lab at the district level

 

Jan Swasthya Sahyog believes in being part of the process while on a journey such important as this by reviving village communities and improving education and the environment around these people. It also aims at spreading awareness of SCD and helping with its diagnosis, screening, and management for people of these tribal areas. This is to say that Jan Swasthya Sahyog intends to make the availability of low-cost and effective health care holistic through these initiatives. 

“जन स्वास्थ्य सहयोग का है ये नारा

मानवता के साथ स्वास्थ्य का काम हमारा”

 

Also Read: Breaking Silence on Menstrual Hygiene Management

Author

Hiral Badiyani is a content writer with a passion for writing and a heart to spread positivity. She completed her Masters in Finance+Marketing and has a portfolio that highlights her interest to explore and learn.

 

Suggest a Story: If you have similar story to refer, please fill in the form