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Indian Association of Muscular Dystrophy
 
 
 

Last Updated on April 30, 2019

Operation in state

  • Himachal Pradesh
 

Thematic Areas

  • Healthcare
  • Disability or specially-abled related
 
 

Tax Compliance Eligibility

  • 80G (for 50% tax benefits)
  • FCRA (Eligible for international funding)
 
 

Indian Association of Muscular Dystrophy

Vetted CSR partner

Established In 1992


Integrated Muscular Dystrophy Rehabilitation Centre , Village Kothon, , Solan , Himachal Pradesh , 173212

About the organization

After about 10 years in active service IAMD takes some consolation from the fact that on account of its continued and relentless efforts families of fellow sufferers have benefited vastly.

IAMD has been working on a multi-pronged strategy to help mitigate the sufferings of these victims in every conceivable manner that is humanly possible. These efforts are being made at four different levels.

1) Through the helpline IAMD envisage Direct Contact Program (D.C.P) with the patients mainly by telephone, newsletters and circulars. This has helped alleviate the self esteem level of patients tremendously. As a result Muscular Dystrophy Families have been saved from the Omnipresent Quacks, Witch Doctors and self styled Hakeems.

2) The feeling of being united in a brotherhood and at difficult times has bolstered confidence of our patients to the extent that today they are economically self dependent and hence to a certain extent, physically as well.

3) IAMD’s Specific Need Oriented Program (SNOP) has focused on the specific needs of our patients e.g. well-designed wheelchairs, gadgets, financial aid etc.

4) Diagnosis is the basic vagary associated with Muscular Dystrophy. Efforts are still on to persuade state run health machinery by way of hospitals to establish proper diagnostic facilities and workshops for doctors to facilitate the diagnosis of Muscular Dystrophy. There is constant follow up with concerned health authorities to make life a little easier for the already despondent patient.

Vision And Mission Statement

RAISING AWARENESS

  •  Improving on awareness helping detect symptoms early
  •  Making family members and general public sensitive to needs of those affected
  •  Offering hope to those identified as suffering from MD

COPING STRONGLY

  • Organising camps aimed at counselling and lifestyle management
  • Wheelchair support for those in need
  • Arranging physiotherapy services
  • Provisioning of caregivers
  • Organising financial assistance needed for procurement of equipment
  • Educating afflicted children

 ENABLING SUPPORT

  • Creating a heightened position within the medical fraternity and policy makers to ensure improved support
  • Raising funds enabling pursuit of a long term strategy to raise resources for the cause
  • Networking with organizations who can contribute to IAMD's goals, also helping strengthen on its delivery
For more information please visit the Link

For More Info....
 

Chief Functionary

Name :  
Ms Sanjana Goyal
 
Designation :  
President
 
Email :  
info@iamd.in
 
 

Contact

Name :  
Sanjana Goyal
 
Designation :  
President
 
Email 1 :  
sanjanagoel@gmail.com
 
Phone :  
9218088880
 
 

CSR projects of organization

Integrated Muscular Dystrophy Rehabilitation Centre
Project Type: CSR
The Indian Association of Muscular Dystrophy (IAMD) was thus established in1992 to support people ....
 
More CSR Info >>
 

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