(PH) is a rare but life-threatening disease that affects the blood pressure in the lungs. In PH, the heart needs to work harder to properly pump the blood to the lungs, causing symptoms like shortness of breath (dyspnea), fatigue, dizziness or fainting spells (syncope), chest pressure or pain, swelling (edema) in the ankles, legs and abdomen (ascites), bluish color to the lips and skin (cyanosis), and irregular heartbeat. There is currently no cure for the disease, and living with pulmonary hypertension is not always easy. There are, however, treatments that can help ease the symptoms of the disease and improve patients’ quality of life.

• Although there is no treatment for this disease daily medication can help these patients to live a normal life. Child Heart Foundation provides free medication to these patients.
• The average cost of medicines for one child is Rs 100000 /year.